Amanda is a serial volunteer whose son, David, succumbed to GBM in 2012 at the age of 18. She was his caregiver throughout the 20-month battle and traveled with him to four different hospitals in four different states. The doctors and researchers they encountered on that journey led them to become passionate advocates for brain cancer research.
In 2013 she formed Dragon Master Foundation, with a mission to find and accelerate cures for cancers and other diseases by fostering and rewarding a community of collaboration and innovation. We seek to spread awareness, expedite research and kinder treatments, and improve the quality of life for patients and their families.
Amanda was named a White House Champion of Change for Precision Medicine because of her work with Dragon Master Foundation.
Amanda serves as the Foundation Liaison for the Children’s Brain Tumor Tissue Consortium Scientific Committee and an advisor to the Duke Glioblastoma Drug Discovery Group. She has also been in working groups for the Beau Biden Cancer Moonshot, the Gabriella Miller Kid’s First Data Resource Center, and the National Cancer Advisory Board (NCAB) Data Science Working Group.